Lifespan Respite
Technical Assistance Center

Important Internet Links for Lifespan Respite

Planning, Building, and Collaboration


Aging and Disability Resource Centers

ADRC Technical Assistance Exchange:

ADRC Overview Training, FAQs and Fact Sheet                                                       

ADRCs and Family-to- Family Health Education Information Centers Collaboration (Using South Carolina Lifespan Respite Program as Example)


ACL and Lifespan Respite Resources

Archived Lifespan Respite Funding Opportunity Announcements from ACL/AoA  

ACL Lifespan Respite Fact Sheet

ARCH Lifespan Links

Lifespan Respite Training and Technical Assistance (fact sheets and background information)    

Lifespan Respite Program Contacts

Lifespan Respite “101” Toolkit


Lifespan Respite “101” Webinar

Lifespan Respite Law

House and Senate Congressional Floor Statements in Support of Final Passage (Dec. 2006)

House Energy and Commerce Committee Report on Lifespan Respite Care Act (Sept. 06)

Tools for Collaboration Fact Sheet and Webinar                                           

ARCH National Respite Locator Service for Families and Providers                                      

National Respite Coalition


Lifespan Respite Task Force                                                                      


Caregiver Assessment

From Family Caregiver Alliance

Selected Caregiver Assessment Measures: A Resource Inventory for Practitioners, Family Caregiver Alliance, 2012 

Caregivers Count, Too! Caregiver Assessment Toolkit

National Consensus Report on Caregiver Assessment


Family Caregiver Alliance Links

National Family Caregiver Resource Center

Family Navigator Service: State-by-State Help for Family Caregivers     


Family Caregiver Facts/Resources

National Alliance for Caregiving and AARP Public Policy Institute (2015). Caregiving in the U.S. 2015. Washington, DC: Authors.

Informal Caregiving for Older Americans: An Analysis of the 2011 National Health and Aging Trends Study, April 2014

Caregiver Action Network

Valuing the Invaluable: 2015 Update - Undeniable Progress, but Big Gaps Remain by Susan C. Reinhard, Lynn Friss Feinberg, Rita Choula, and Ari Houser, AARP Public Policy InstituteNational Alliance for Caregiving and AARP 2015 Caregiver Survey Report

AARP, State-by-State Table on the Number of Caregivers and the Economic Value of Caregiving, 2013  

Congressional Budget Office (2013). Rising Demand for Long-Term Services and Supports for Elderly People.  Washington, DC: Author

Population Reference Bureau. Family Caregiving. Today’s Research on Aging, No. 33, February 2016.  

Jennifer L. Wolff, Brenda C. Spillman, Vicki A. Freedman, and Judith D. Kasper (2016). A National Profile of Family and Unpaid Caregivers Who Assist Older Adults With Health Care Activities. JAMA Intern Med. 2016;176(3):372-379.

Metlife Study of Working Caregivers and Employer Health Care Costs

The Evercare® Survey of The Economic Downturn and its Impact on Family Caregiving

Raising Expectations: A State Scorecard on Long-Term Services and Supports (LTSS) for Older Adults, People with Physical Disabilities, and Family Caregivers, 2014

Gallup Poll Data Part 1: In U.S., Working Caregivers Face Wellbeing Challenges, December 8, 20

Gallup Poll Data Part 2: In U.S., Caregivers Suffer From Poorer Physical Health, February 4, 2011 

Gallup Poll Data Part 3: In U.S., Caregivers' Emotional Health Often Suffers, May 27, 2011

Pew Research Center, 2013, Family Caregivers are Wired for Health -- 39% of U.S. adults provide care for a loved one, up from 30% in 2010, and many navigate health care with the help of technology.

Respite Coalitions

State Respite Coalition Contacts

Building Respite Coalitions Guide

State Respite Coalition Fact Sheets             


Respite Facts


Respite Facts and Talking Points


Respite and Caregiving Fact Sheet, 2012

Family Caregiver Alliance. Making the Case: Saving Your State’s Caregiver Support Programs: Talking Points for Advocates, Administrators, Providers and Caregivers

Lifespan Respite Transition Issue Brief 2008

Benefits and Cost Savings of Respite Care

Respite and Crisis Care FRIENDS Fact Sheet

ARCH Fact Sheets                                               


Respite Funding 

Federal Funding and Support Opportunities for Respite: Building Blocks

Building Blocks for Lifespan Respite: Federal Funding Opportunities, Updated 2015 


Respite Provider Training and Credentialing Links

Links to websites of other organizations or services providers

  • Direct Service Worker Advocacy and Clearinghouse Information
  • Respite Provider and other Direct Care Worker Training, Credentialing
  • Child Respite Provider Training and Credentialing
  • Dementia Training and Certification 


Useful Data Bases and Tables for State Specific Needs Statements

AARP, State-by-State Table on the Number of Caregivers and the Economic Value of Caregiving, 2013    

American Psychological Association Stress in America survey data on caregiver stress and health related consequences. Results published for the nation, by region, and by major cities, including Atlanta, Chicago, Denver, Detroit, Los Angeles, New York City,  Seattle, and Washington, DC.    

Data Resource Center for Child and Adolescent Health: A product of the Child and Adolescent Health InitiativeNational and state trend data on child and adolescent health.

National Survey of Children's Health

The National Survey of Children with Special Health Care Needs (NS-CSHCN) Chartbook 2009-2010

AARP’s Raising Expectations: A State Scorecard on Long-Term Services and Supports (LTSS) for Older Adults, People with Physical Disabilities, and Family Caregivers, 2014. State data.

Disability Statistics by State and County or Group of Counties

Aging in the United States, Population Reference Bureau

2015 Annual Disability Statistics Compendium, Rehabilitation Research and Training Center on Disability Statistics and Demographics

Census Data on Disability                                                                                                                                                   

UCP's Annual The Case for Inclusion Ranks 50 States & DC on Medicaid Services for Individuals with Disabilities (current and past reports)                                                                               

Kaiser Family Foundation Medicaid Benefits Online Database

Centers for Disease Control and Prevention State Data on Disability and Health

The State of the States in Developmental Disabilities.



Lifespan Respite

Technical Assistance Center

ARCH National Respite Network and Resource Center

4016 Oxford Street

Annandale, VA 22003

(703) 256-2084

This project is supported, in part by grant number 90LT0002, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration for Community Living policy.


The ARCH National Respite Network and Resource Center is a division of the Chapel Hill Training-Outreach Project, Inc. | 800 Eastowne Drive, Chapel Hill, NC, 27514 |



Powered by Wild Apricot Membership Software