Important Internet Links
for Lifespan Respite
Planning, Building, and Collaboration
Aging and Disability Resource Centers
ADRC Technical Assistance Exchange: http://www.adrc-tae.org/tiki-index.php?page=HomePage
ADRC Overview Training, FAQs and Fact Sheet http://www.adrc-tae.org/tiki-index.php?page=OverviewTraining
ADRCs and Family-to- Family Health Education Information Centers Collaboration (Using South Carolina Lifespan Respite Program as Example)
AoA and Lifespan Respite Resources
Lifespan Respite Program, Grantee Abstracts, etc. http://www.aoa.gov/AoARoot/AoA_Programs/HCLTC/LRCP/index.aspx
FY 2010 Lifespan Respite Program Announcement http://www.archrespite.org/docs/FY_2010_Lifepsan_Respite_508_April_2010.pdf
FY2011 Lifespan Respite Program Announcement
http://www.aoa.gov/AoARoot/Grants/Funding/index.aspx
FY2011 Lifespan Respite Care Program - Competing Program Expansion Supplements http://www.aoa.gov/AoARoot/Grants/Funding/index.aspx
AoA Lifespan Respite Fact Sheet http://www.aoa.gov/AoARoot/Press_Room/Products_Materials/fact/pdf/Lifespan_Respite_Care_Program.pdf
ARCH Lifespan Links
Lifespan Respite Training and Technical Assistance (fact sheets and background information) http://www.archrespite.org/ta-center-for-respite/ta-center-for-lifespan-respite
Lifespan Respite Program Contacts http://www.archrespite.org/lifespan-programs
Lifespan Respite “101” Toolkit http://www.archrespite.org/productspublications#Toolkit
Lifespan Respite “101” Webinar
http://www.archrespite.org/ta-center-for-respite/webinars-and-resources/webinar-lifespan-respite-101
Lifespan Respite Law http://www.archrespite.org/images/docs/Lifespan_Respite_Act_2006.pdf
House and Senate Congressional Floor Statements in Support of Final Passage (Dec. 2006) http://www.archrespite.org/docs/House-SenateCRFloor06.pdf
House Energy and Commerce Committee Report on Lifespan Respite Care Act (Sept. 06)http://www.archrespite.org/images/docs/PublicLawHouseReport.pdf
Tools for Collaboration Fact Sheet and Webinar http://archrespite.org/images/docs/Webinar_Collaboration_Background3.pdf
ARCH National Respite Locator Service for Families and Providers www.respitelocator.org
National Respite Coalition
http://www.archrespite.org/national-respite-coalition
Lifespan Respite Task Force http://www.archrespite.org/national-respite-coalition/lifespan-respite-task-force
Caregiver Assessment
Caregivers Count, Too! Caregiver Assessment Toolkit http://caregiver.org/caregiver/jsp/content_node.jsp?nodeid=1695
National Consensus Report on Caregiver Assessment http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=1630
Family Caregiver Alliance Links
National Family Caregiver Resource Center www.caregiver.org
Technical Assistance Center for Caregiver Programs http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=2343
Family Navigator Service: State-by-State Help for Family Caregivers http://www.caregiver.org/caregiver/jsp/fcn_content_node.jsp?nodeid=2083
Newsletter for the Family Caregiver and Lifespan Respite Training and TA Centers http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=2366
Innovations Clearinghouse on Family Caregiving http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=2319
Family Caregiver Facts/Resources
National Family Caregiver Association www.nfcacares.org
National Alliance for Caregiving and AARP 2009 Caregiver Survey Executive Summary http://www.caregiving.org/data/CaregivingUSAllAgesExecSum.pdf
Metlife Study of Working Caregivers and Employer Health Care Costs http://www.caregiving.org/data/Caregiver_Costs_Study_Web_FINAL_2-12-10.pdf
The Evercare® Survey of The Economic Downturn and its Impact on Family Caregiving http://www.caregiving.org/pdf/research/EVC_Caregivers_Economy_Report%20FINAL_4-28-09.pdf
Valuing the Invaluable: The Economic Value of Family Caregiving, Update 2011 http://www.aarp.org/relationships/caregiving/info-07-2011/valuing-the-invaluable.html
Raising Expectations: A State Scorecard on Long-Term Services and Supports (LTSS) for Older Adults, People with Physical Disabilities, and Family Caregivers, 2011 http://www.longtermscorecard.org/
Gallup Poll Data Part 1: In U.S., Working Caregivers Face Wellbeing Challenges, December 8, 20 http://www.gallup.com/poll/145115/Working-Caregivers-Face-Wellbeing-Challenges.aspx
Gallup Poll Data Part 2: In U.S., Caregivers Suffer From Poorer Physical Health, February 4, 2011 http://www.gallup.com/poll/145940/Caregivers-Suffer-Poorer-Physical-Health.aspx
Gallup Poll Data Part 3: In U.S., Caregivers' Emotional Health Often Suffers, May 27, 2011 http://www.gallup.com/poll/147815/Caregivers-Emotional-Health-Often-Suffers.aspx?utm_source=email%2Ba%2Bfriend&utm_medium=email&utm_campaign=sharing&utm_term=Caregivers-Emotional-Health-Often-Suffers&utm_content=morelink
Respite Coalitions
State Respite Coalition Contacts http://www.archrespite.org/state-respite-coalitions
Building Respite Coalitions Guide http://www.archrespite.org/docs/Building_Respite_CoaltionsUpdate_(Final).pdf
State Respite Coalition Fact Sheets State Respite Coalition Fact Sheets Compendium
Respite Facts
Respite Care Facts 2011 http://www.archrespite.org/images/docs/2011_Respite_and_Caregiving_Fact_Sheet.pdf
Family Caregiver Alliance. Making the Case: Saving Your State’s Caregiver Support Programs: Talking Points for Advocates, Administrators, Providers and Caregivers http://www.archrespite.org/images/docs/2009-Primer_State_Advocacy.pdf
Lifespan Respite Transition Issue Brief 2008 http://www.archrespite.org//docs/FinalTransitioBrief.pdf
Benefits and Cost Savings of Respite Care http://www.archrespite.org/images/Lifespan_Reauthorization/Cost_Fact_Sheet_01-12.pdf
Respite and Crisis Care FRIENDS Fact Sheet http://www.friendsnrc.org/download/cbcaprespite.pdf
ARCH Fact Sheets http://www.archrespite.org/productspublications/arch-fact-sheets
Respite Funding
Federal Funding and Support Opportunities for Respite: Building Blocks
Building Blocks for Lifespan Respite: Federal Funding Opportunities http://www.archrespite.org/images/docs/Lifespan_Summit_Docs/Building_Blocks_for_Lifspan_Respite.pdf
Respite Provider Training and Credentialing Links
Links to websites of other organizations or services providers http://www.archrespite.org/ta-center-for-respite/training-ideas
- Direct Service Worker Advocacy and Clearinghouse Information
- Respite Provider and other Direct Care Worker Training, Credentialing
- Child Respite Provider Training and Credentialing
- Dementia Training and Certification
Useful Data Bases and Tables for State Specific Needs Statements
AARP, State-by-State Table on the Number of Caregivers and the Economic Value of Caregiving, 2009 http://www.archrespite.org/images/Books/State_by_State_Table_Value_of_Caregivers0001.pdf
American Psychological Association Stress in America survey data on caregiver stress and health related consequences. Results published for the nation, by region, and by major cities, including Atlanta, Chicago, Denver, Detroit, Los Angeles, New York City, Seattle, and Washington, DC. http://www.apa.org/news/press/releases/stress/2011/health-risk.aspx
Children with Special Health Care Needs in Context: A Portrait of States and the Nation 2007 Data by state: http://mchb.hrsa.gov/nsch/07cshcn/state/state.html
AARP’s Raising Expectations: A State Scorecard on Long-Term Services and Supports (LTSS) for Older Adults, People with Physical Disabilities, and Family Caregivers, 2011. State data. http://www.longtermscorecard.org/
Disability Statistics by State and County or Group of Counties Data http://disabilityplanningdata.com/site/pick_a_state.php
Census Data on Disability http://www.census.gov/hhes/www/disability/disability.html
UCP's 6th Annual The Case for Inclusion Ranks 50 States & DC on Medicaid Services for Individuals with Disabilities (past reports also) http://medicaid.ucp.org/
Kaiser Family Foundation Medicaid Benefits Online Database http://medicaidbenefits.kff.org/index.jsp
Centers for Disease Control and Prevention State Data on Disability and Health http://www.cdc.gov/ncbddd/disabilityandhealth/data.html
Data Resource Center for Child and Adolescent Health: A product of the Child and Adolescent Health Intiative. National and state trend data on child and adolescent health http://www.childhealthdata.org/browse/rankings?utm_source=New+Data%2C+Visit+us+at+AMCHP&utm_campaign=2012+AMCHP+Announcement&utm_medium=email
