Lifespan Respite Technical Assistance

Lifespan Respite
Technical Assistance Center

Important Internet Links

 for Lifespan Respite

 Planning, Building, and Collaboration

 

 

 


Aging and Disability Resource Centers

ADRC Technical Assistance Exchange: http://www.adrc-tae.org/tiki-index.php?page=HomePage

ADRC Overview Training, FAQs and Fact Sheet                                                                 http://www.adrc-tae.org/tiki-index.php?page=OverviewTraining

ADRCs and Family-to- Family Health Education Information Centers Collaboration (Using South Carolina Lifespan Respite Program as Example)

 

AoA and Lifespan Respite Resources

Lifespan Respite Program, Grantee Abstracts, etc.
http://www.acl.gov/Programs/CDAP/OIP/LifespanRespite/index.aspx  

Archived Lifespan Respite Funding Opportunity Announcements from ACL/AoA
http://archrespite.org/ta-center-for-respite#ArchivedPAs

AoA Lifespan Respite Fact Sheet
http://www.aoa.gov/AoARoot/Press_Room/Products_Materials/fact/pdf/Lifespan_Respite_Care_Program.pdf

 

ARCH Lifespan Links

Lifespan Respite Training and Technical Assistance (fact sheets and background information)              http://www.archrespite.org/ta-center-for-respite/ta-center-for-lifespan-respite

Lifespan Respite Program Contacts http://www.archrespite.org/lifespan-programs

Lifespan Respite “101” Toolkit     http://www.archrespite.org/productspublications#Toolkit

 

Lifespan Respite “101” Webinar  

http://www.archrespite.org/ta-center-for-respite/webinars-and-resources/webinar-lifespan-respite-101

Lifespan Respite Law     http://www.archrespite.org/images/docs/Lifespan_Respite_Act_2006.pdf

House and Senate Congressional Floor Statements in Support of Final Passage (Dec. 2006) http://www.archrespite.org/docs/House-SenateCRFloor06.pdf

House Energy and Commerce Committee Report on Lifespan Respite Care Act (Sept. 06)http://www.archrespite.org/images/docs/PublicLawHouseReport.pdf

Tools for Collaboration Fact Sheet and Webinar                                                   http://archrespite.org/images/docs/Webinar_Collaboration_Background3.pdf  

ARCH National Respite Locator Service for Families and Providers                                               www.respitelocator.org

National Respite Coalition

http://www.archrespite.org/national-respite-coalition

 

Lifespan Respite Task Force                                                                                http://www.archrespite.org/national-respite-coalition/lifespan-respite-task-force

 

Caregiver Assessment

From Family Caregiver Alliance

Selected Caregiver Assessment Measures: A Resource Inventory for Practitioners, Family Caregiver Alliance, 2012 http://caregiver.org/caregiver/jsp/content_node.jsp?nodeid=2604 

Caregivers Count, Too! Caregiver Assessment Toolkit http://caregiver.org/caregiver/jsp/content_node.jsp?nodeid=1695

National Consensus Report on Caregiver Assessment http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=1630

 

Family Caregiver Alliance Links

National Family Caregiver Resource Center     www.caregiver.org

Technical Assistance Center for Caregiver Programs  http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=2343

Family Navigator Service: State-by-State Help for Family Caregivers http://www.caregiver.org/caregiver/jsp/fcn_content_node.jsp?nodeid=2083

Newsletter for the Family Caregiver and Lifespan Respite Training and TA Centers  http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=2366

Innovations Clearinghouse on Family Caregiving http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=2319

 

 

Family Caregiver Facts/Resources

National Family Caregiver Association www.nfcacares.org

National Alliance for Caregiving and AARP 2009 Caregiver Survey Executive Summary http://www.caregiving.org/data/CaregivingUSAllAgesExecSum.pdf

Metlife Study of Working Caregivers and Employer Health Care Costs http://www.caregiving.org/data/Caregiver_Costs_Study_Web_FINAL_2-12-10.pdf

The Evercare® Survey of The Economic Downturn and its Impact on Family Caregiving     http://www.caregiving.org/pdf/research/EVC_Caregivers_Economy_Report%20FINAL_4-28-09.pdf

Valuing the Invaluable: The Economic Value of Family Caregiving, Update 2011 http://www.aarp.org/relationships/caregiving/info-07-2011/valuing-the-invaluable.html

Raising Expectations: A State Scorecard on Long-Term Services and Supports (LTSS) for Older Adults, People with Physical Disabilities, and Family Caregivers, 2011    http://www.longtermscorecard.org/

Gallup Poll Data Part 1: In U.S., Working Caregivers Face Wellbeing Challenges, December 8, 20 http://www.gallup.com/poll/145115/Working-Caregivers-Face-Wellbeing-Challenges.aspx

Gallup Poll Data Part 2: In U.S., Caregivers Suffer From Poorer Physical Health, February 4, 2011 http://www.gallup.com/poll/145940/Caregivers-Suffer-Poorer-Physical-Health.aspx 

Gallup Poll Data Part 3: In U.S., Caregivers' Emotional Health Often Suffers, May 27, 2011 http://www.gallup.com/poll/147815/Caregivers-Emotional-Health-Often-Suffers.aspx?utm_source=email%2Ba%2Bfriend&utm_medium=email&utm_campaign=sharing&utm_term=Caregivers-Emotional-Health-Often-Suffers&utm_content=morelink

 

Respite Coalitions

State Respite Coalition Contacts http://www.archrespite.org/state-respite-coalitions

Building Respite Coalitions Guide http://www.archrespite.org/docs/Building_Respite_CoaltionsUpdate_(Final).pdf

State Respite Coalition Fact Sheets State Respite Coalition Fact Sheets Compendium

 

Respite Facts

 

Respite Facts and Talking Points
http://archrespite.org/national-respite-coalition/national-respite-coalition#FACTS

 

Respite and Caregiving Fact Sheet, 2012
http://archrespite.org/images/Lifespan_Reauthorization/2012_Respite_and_Caregiving_Fact_Sheetrev_6_12_12.pdf

Family Caregiver Alliance. Making the Case: Saving Your State’s Caregiver Support Programs: Talking Points for Advocates, Administrators, Providers and Caregivers http://www.archrespite.org/images/docs/2009-Primer_State_Advocacy.pdf

Lifespan Respite Transition Issue Brief 2008 http://www.archrespite.org//docs/FinalTransitioBrief.pdf

Benefits and Cost Savings of Respite Care http://www.archrespite.org/images/Lifespan_Reauthorization/Cost_Fact_Sheet_01-12.pdf

Respite and Crisis Care FRIENDS Fact Sheet    http://www.friendsnrc.org/download/cbcaprespite.pdf

ARCH Fact Sheets                                                         http://www.archrespite.org/productspublications/arch-fact-sheets

 

Respite Funding 

Federal Funding and Support Opportunities for Respite: Building Blocks

Building Blocks for Lifespan Respite: Federal Funding Opportunities
http://archrespite.org/images/lifespan101/2013_Toolkit/Building_Blocks_for_Lifespan_Respite_2013.pdf

 

Respite Provider Training and Credentialing Links

Links to websites of other organizations or services providers http://archrespite.org/training-ideas

  • Direct Service Worker Advocacy and Clearinghouse Information
  • Respite Provider and other Direct Care Worker Training, Credentialing
  • Child Respite Provider Training and Credentialing
  • Dementia Training and Certification 

 

Useful Data Bases and Tables for State Specific Needs Statements

AARP, State-by-State Table on the Number of Caregivers and the Economic Value of Caregiving, 2009 http://www.archrespite.org/images/Books/State_by_State_Table_Value_of_Caregivers0001.pdf

American Psychological Association Stress in America survey data on caregiver stress and health related consequences. Results published for the nation, by region, and by major cities, including Atlanta, Chicago, Denver, Detroit, Los Angeles, New York City,  Seattle, and Washington, DC.              http://www.apa.org/news/press/releases/stress/2011/health-risk.aspx

Children with Special Health Care Needs in Context: A Portrait of States and the Nation 2007 Data by state: http://mchb.hrsa.gov/nsch/07cshcn/state/state.html

The National Survey of Children with Special Health Care Needs (NS-CSHCN) Chartbook 2009-2010
http://mchb.hrsa.gov/cshcn0910/

AARP’s Raising Expectations: A State Scorecard on Long-Term Services and Supports (LTSS) for Older Adults, People with Physical Disabilities, and Family Caregivers, 2011. State data.  http://www.longtermscorecard.org/

Disability Statistics by State and County or Group of Counties  Data http://disabilityplanningdata.com/site/pick_a_state.php

Census Data on Disability                                      http://www.census.gov/hhes/www/disability/disability.html

UCP's Annual The Case for Inclusion Ranks 50 States & DC on Medicaid Services for Individuals with Disabilities (current and past reports)                                                                                         http://medicaid.ucp.org/

Kaiser Family Foundation Medicaid Benefits Online Database http://medicaidbenefits.kff.org/index.jsp

Centers for Disease Control and Prevention State Data on Disability and Health http://www.cdc.gov/ncbddd/disabilityandhealth/data.html

Data Resource Center for Child and Adolescent Health: A product of the Child and Adolescent Health Initiative. National and state trend data on child and adolescent health http://www.childhealthdata.org/browse/rankings?utm_source=New+Data%2C+Visit+us+at+AMCHP&utm_campaign=2012+AMCHP+Announcement&utm_medium=email

 

 

 
 

Lifespan Respite

Technical Assistance Center

ARCH National Respite Network and Resource Center

4016 Oxford Street

Annandale, VA 22003

(703) 256-2084 www.archrespite.org

This project is supported, in part, under a grant from the U.S. Department of Health and Human Services, Administration on Aging. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions.  These contents, however, do not necessarily represent the policy of the U.S. Department of Health and Human Services and endorsement by the Federal Government should not be assumed.

 

The ARCH National Respite Network and Resource Center is a division of the Chapel Hill Training-Outreach Project, Inc.; 800 Eastowne Drive, Chapel Hill, NC, 27514; www.chtop.org

 

 

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