Lifespan Respite
Technical Assistance Center

Important Internet Links for Lifespan Respite

Planning, Building, and Collaboration

 


Aging and Disability Resource Centers

ADRC Technical Assistance Exchange: http://www.adrc-tae.org/tiki-index.php?page=HomePage

ADRC Overview Training, FAQs and Fact Sheet                                                                 http://www.adrc-tae.org/tiki-index.php?page=OverviewTraining

ADRCs and Family-to- Family Health Education Information Centers Collaboration (Using South Carolina Lifespan Respite Program as Example)

 

ACL and Lifespan Respite Resources

Archived Lifespan Respite Funding Opportunity Announcements from ACL/AoA            http://archrespite.org/ta-center-for-respite#ArchivedPAs

ACL Lifespan Respite Fact Sheet http://archrespite.org/images/lifespan101/Update_2015/2014_The_Lifespan_Respite_Care_Program_Fact_Sheet_Updated_9-3-14.pdf

ARCH Lifespan Links

Lifespan Respite Training and Technical Assistance (fact sheets and background information)              http://www.archrespite.org/ta-center-for-respite/ta-center-for-lifespan-respite

Lifespan Respite Program Contacts http://www.archrespite.org/lifespan-programs

Lifespan Respite “101” Toolkit     http://www.archrespite.org/productspublications#Toolkit

 

Lifespan Respite “101” Webinar  

http://archrespite.org/webinars-and-teleconferences/webinar-lifespan-respite-101#Resources1

Lifespan Respite Law     http://www.archrespite.org/images/docs/Lifespan_Respite_Act_2006.pdf

House and Senate Congressional Floor Statements in Support of Final Passage (Dec. 2006) http://www.archrespite.org/docs/House-SenateCRFloor06.pdf

House Energy and Commerce Committee Report on Lifespan Respite Care Act (Sept. 06)  http://www.archrespite.org/images/docs/PublicLawHouseReport.pdf

Tools for Collaboration Fact Sheet and Webinar                                                   http://archrespite.org/images/docs/Webinar_Collaboration_Background3.pdf  

ARCH National Respite Locator Service for Families and Providers             http://archrespite.org/respitelocator                                   

National Respite Coalition

http://www.archrespite.org/national-respite-coalition

 

Lifespan Respite Task Force                                                                                http://www.archrespite.org/national-respite-coalition/lifespan-respite-task-force

 

Caregiver Assessment

From Family Caregiver Alliance

Selected Caregiver Assessment Measures: A Resource Inventory for Practitioners, Family Caregiver Alliance, 2012   https://caregiver.org/selected-caregiver-assessment-measures-resource-inventory-practitioners-2012 

Caregivers Count, Too! Caregiver Assessment Toolkit   https://caregiver.org/caregivers-count-too-toolkit

National Consensus Report on Caregiver Assessment  https://caregiver.org/national-consensus-report-caregiver-assessment-volumes-1-2

 

Family Caregiver Alliance Links

National Family Caregiver Resource Center     www.caregiver.org

Family Navigator Service: State-by-State Help for Family Caregivers       https://caregiver.org/family-care-navigator     

 

Family Caregiver Facts/Resources

National Alliance for Caregiving and AARP Public Policy Institute (2015). Caregiving in the U.S. 2015. Washington, DC: Authors. http://www.caregiving.org/caregiving2015/

Informal Caregiving for Older Americans: An Analysis of the 2011 National Health and Aging Trends Study, April 2014  http://aspe.hhs.gov/daltcp/reports/2014/NHATS-IC.cfm

Caregiver Action Network   http://www.caregiveraction.org/

Valuing the Invaluable: 2015 Update - Undeniable Progress, but Big Gaps Remain by Susan C. Reinhard, Lynn Friss Feinberg, Rita Choula, and Ari Houser, AARP Public Policy InstituteNational Alliance for Caregiving and AARP 2015 Caregiver Survey Report http://www.caregiving.org/caregiving2015/

AARP, State-by-State Table on the Number of Caregivers and the Economic Value of Caregiving, 2013            http://archrespite.org/images/Facts_TalkingPts/2015_State_Table_of_Caregivers0001.pdf

Congressional Budget Office (2013). Rising Demand for Long-Term Services and Supports for Elderly People.  Washington, DC: Author  https://www.cbo.gov/publication/44363

Population Reference Bureau. Family Caregiving. Today’s Research on Aging, No. 33, February 2016.http://www.prb.org/pdf16/TodaysResearchAging33.pdf  

Jennifer L. Wolff, Brenda C. Spillman, Vicki A. Freedman, and Judith D. Kasper (2016). A National Profile of Family and Unpaid Caregivers Who Assist Older Adults With Health Care Activities. JAMA Intern Med. 2016;176(3):372-379.

Metlife Study of Working Caregivers and Employer Health Care Costs http://www.caregiving.org/data/Caregiver_Costs_Study_Web_FINAL_2-12-10.pdf

The Evercare® Survey of The Economic Downturn and its Impact on Family Caregiving     http://www.caregiving.org/pdf/research/EVC_Caregivers_Economy_Report%20FINAL_4-28-09.pdf

Raising Expectations: A State Scorecard on Long-Term Services and Supports (LTSS) for Older Adults, People with Physical Disabilities, and Family Caregivers, 2014    http://www.longtermscorecard.org/

Gallup Poll Data Part 1: In U.S., Working Caregivers Face Wellbeing Challenges, December 8, 20 http://www.gallup.com/poll/145115/Working-Caregivers-Face-Wellbeing-Challenges.aspx

Gallup Poll Data Part 2: In U.S., Caregivers Suffer From Poorer Physical Health, February 4, 2011 http://www.gallup.com/poll/145940/Caregivers-Suffer-Poorer-Physical-Health.aspx 

Gallup Poll Data Part 3: In U.S., Caregivers' Emotional Health Often Suffers, May 27, 2011 http://www.gallup.com/poll/147815/Caregivers-Emotional-Health-Often-Suffers.aspx?utm_source=email%2Ba%2Bfriend&utm_medium=email&utm_campaign=sharing&utm_term=Caregivers-Emotional-Health-Often-Suffers&utm_content=morelink

Pew Research Center, 2013, Family Caregivers are Wired for Health -- 39% of U.S. adults provide care for a loved one, up from 30% in 2010, and many navigate health care with the help of technology. http://archrespite.org/images/docs/Outside_Reports/PewResearch_FamilyCaregivers.pdf


Respite Coalitions

State Respite Coalition Contacts http://www.archrespite.org/state-respite-coalitions

Building Respite Coalitions Guide http://www.archrespite.org/docs/Building_Respite_CoaltionsUpdate_(Final).pdf

State Respite Coalition Fact Sheets                       http://archrespite.org/images/docs/Guides_Compendiums_2014/ARCH_State_Respite_Coalitions_updatedcont.pdf

 

Respite Facts

 

Respite Facts and Talking Points
http://archrespite.org/national-respite-coalition/national-respite-coalition#FACTS

 

Respite and Caregiving Fact Sheet, 2012
http://archrespite.org/images/Lifespan_Reauthorization/2012_Respite_and_Caregiving_Fact_Sheetrev_6_12_12.pdf

Family Caregiver Alliance. Making the Case: Saving Your State’s Caregiver Support Programs: Talking Points for Advocates, Administrators, Providers and Caregivers http://www.archrespite.org/images/docs/2009-Primer_State_Advocacy.pdf

Lifespan Respite Transition Issue Brief 2008 http://www.archrespite.org//docs/FinalTransitioBrief.pdf

Benefits and Cost Savings of Respite Care http://www.archrespite.org/images/Lifespan_Reauthorization/Cost_Fact_Sheet_01-12.pdf

Respite and Crisis Care FRIENDS Fact Sheet    http://www.friendsnrc.org/download/cbcaprespite.pdf

ARCH Fact Sheets                                                         http://www.archrespite.org/productspublications/arch-fact-sheets

 

Respite Funding 

Federal Funding and Support Opportunities for Respite: Building Blocks

Building Blocks for Lifespan Respite: Federal Funding Opportunities, Updated 2015
http://archrespite.org/images/lifespan101/Update_2015/Building_Blocks_for_Lifespan_Respite_2016_Final.pdf 

 

Respite Provider Training and Credentialing Links

Links to websites of other organizations or services providers http://archrespite.org/training-ideas

  • Direct Service Worker Advocacy and Clearinghouse Information
  • Respite Provider and other Direct Care Worker Training, Credentialing
  • Child Respite Provider Training and Credentialing
  • Dementia Training and Certification 

 

Useful Data Bases and Tables for State Specific Needs Statements

AARP, State-by-State Table on the Number of Caregivers and the Economic Value of Caregiving, 2013            http://archrespite.org/images/Facts_TalkingPts/2015_State_Table_of_Caregivers0001.pdf  

American Psychological Association Stress in America survey data on caregiver stress and health related consequences. Results published for the nation, by region, and by major cities, including Atlanta, Chicago, Denver, Detroit, Los Angeles, New York City,  Seattle, and Washington, DC.              http://www.apa.org/news/press/releases/stress/2011/health-risk.aspx

Data Resource Center for Child and Adolescent Health: A product of the Child and Adolescent Health InitiativeNational and state trend data on child and adolescent health.  http://www.childhealthdata.org/browse/rankings?utm_source=New+Data%2C+Visit+us+at+AMCHP&utm_campaign=2012+AMCHP+Announcement&utm_med

National Survey of Children's Health  http://www.childhealthdata.org/learn/NSCH

The National Survey of Children with Special Health Care Needs (NS-CSHCN) Chartbook 2009-2010
http://mchb.hrsa.gov/cshcn0910/

AARP’s Raising Expectations: A State Scorecard on Long-Term Services and Supports (LTSS) for Older Adults, People with Physical Disabilities, and Family Caregivers, 2014. State data.  http://www.longtermscorecard.org/

Disability Statistics by State and County or Group of Counties  http://disabilityplanningdata.com/site/pick_a_state.php

Aging in the United States, Population Reference Bureau   http://www.prb.org/Publications/Reports/2015/unitedstates-population-bulletin.aspx?_cldee=amthZ2FuQGFyY2hyZXNwaXRlLm9yZw%3d%3d

2015 Annual Disability Statistics Compendium, Rehabilitation Research and Training Center on Disability Statistics and Demographics  http://www.disabilitycompendium.org/docs/default-source/2015-compendium/compendium_2015_final.pdf

Census Data on Disability                                                                                                                        http://www.census.gov/people/disability/                                     

UCP's Annual The Case for Inclusion Ranks 50 States & DC on Medicaid Services for Individuals with Disabilities (current and past reports)                                                                                         http://medicaid.ucp.org/

Kaiser Family Foundation Medicaid Benefits Online Database http://medicaidbenefits.kff.org/index.jsp

Centers for Disease Control and Prevention State Data on Disability and Health http://www.cdc.gov/ncbddd/disabilityandhealth/data.html

The State of the States in Developmental Disabilities. http://www.stateofthestates.org/

 

 

Lifespan Respite

Technical Assistance Center

ARCH National Respite Network and Resource Center

4016 Oxford Street

Annandale, VA 22003

(703) 256-2084 www.archrespite.org

This project is supported, in part by grant number 90LT0002, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration for Community Living policy.

 

The ARCH National Respite Network and Resource Center is a division of the Chapel Hill Training-Outreach Project, Inc. | 800 Eastowne Drive, Chapel Hill, NC, 27514 | www.chtop.org

 

 

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